We are a family-led non-profit organization born from personal experience with Duchenne Muscular Dystrophy (DMD). As parents of a child with DMD, we understand firsthand the challenges, hopes, and journey that come with this diagnosis. Our mission is to support, connect, and empower families affected by Duchenne Muscular Dystrophy.
We envision a world where every person affected by Duchenne Muscular Dystrophy has access to proper medical care, essential support services, and a strong community network, regardless of their location or economic situation.
Our mission is to transform the landscape of DMD care and support, primarily in Bangladesh, with plans to expand our reach globally. We focus on:
Providing financial assistance for medical care and essential equipment
Offering mental health support and counseling services for patients and families
Connecting families with medical professionals experienced in DMD care
Creating support groups and networking opportunities for DMD families
Raising awareness about DMD among medical professionals and the general public
Advocating for better healthcare policies and support systems
Building partnerships with international DMD organizations
Conducting fundraising campaigns to sustain and expand our support programs
Our organization is here for:
Families who have recently received a DMD diagnosis
Parents and caregivers managing daily life with DMD
Siblings and extended family members
Anyone seeking to understand and support those affected by DMD
Whether you're a parent, family member, or supporter, you're not alone on this journey. Together, we can build a stronger support network for all those affected by Duchenne Muscular Dystrophy. Connect with us to share your story, find resources, or learn how you can help make a difference in the lives of DMD families.